September is Charcot-Marie-Tooth Awareness month. CMTÂ affects 1 in 2,500 people and I’m speaking up about how this neuromuscular disease impacts my life and my fitness. I’m stronger than the obstacles I face. You can’t choose your genetics but you can choose your attitude. Catch up on My CMT Story here: Run for a Purpose My… Continue reading Finding Grace Despite it All
Tag: CMT
Run to Inspire
A few months back I explained why I run for a reason; to raise awareness for hereditary neuropathies and Charcot-Marie-Tooth disorder. As the months went by, this purpose expanded into something more. I run to inspire. Growing up, I was tall, gangly, and awkward. More often than my sister I would stub my toe or… Continue reading Run to Inspire
The Strength to Start Running
In 2001 I had a growth spurt. I grew 3 inches, then promptly lost it. As it turns out, I have scoliosis. But it wasn’t that simple. I was diagnosed with Charcot-Marie-Tooth, a genetic neuromuscular disorder caused by the degeneration of the mylene sheaf lining the peripheral nerves. This causes muscular atrophy, joint pain, and… Continue reading The Strength to Start Running